Thursday, May 30, 2019

SCT #2

First, apologies to those who follow us through this blog, we intend to update more frequently but get caught up in life.

We are inpatient at Johns Hopkins for Lincoln's second Stem Cell Transplant. We have been here for a week and today he received his own stem cells back. This transplant marks the end of chemotherapy for him so we held a small No More Chemo party. While he has a long road ahead of him still, we are thrilled to get past this stage.

Lincoln and his no more chemo cake
Today is considered Day 0 in the transplant world. For the next 100 days, we count up and by day 100 we can breath a little easier. We can't travel more than an hour away from his treating hospital and he's still considered very immune compromised until then.

So far, Lincoln is handling this transplant well, symptoms of mucositis have begun appearing sooner this time. The doctors say this is to be expected since he was on a harsher round of drugs and his system was already at a weakened state from his last transplant.

We are hoping to only be here for another two weeks but only time will tell. Transplants are so scary because it really feels like anything could happen any given day. So we are grateful for the good days, hold our breath on the bad days and push through each day we can.

Thank you to all those who think of us and our guy, whether it's through prayer, good vibes or thoughts, we are so grateful for it all. This is a tough road and it's made a bit easier knowing we've got an army behind us.

xoxo,

Megan

 

4 comments:

  1. Thank you for your update. Praying for you and Lincoln every day.

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  2. Yes thank you for the update. Praying for you all. Brave little man you got three 😍🤩

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  3. love reading updates on the little man. So glad and continuing to pray that things go in the best direction possible. Love you guys!

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