Wednesday, March 27, 2019

Results are in!

Mom and I just got done meeting with Dr. Chen and the results are fantastic! The MIBG results are "nearly normal" when pressed as to what Lincoln's curie score would be we were told that Dr. Chen would score it a 0. There are small areas that may be lighting up but with the way the scans read it's very difficult to tell. When Lincoln was diagnosed his score was a 7. We also got the results of the the bone marrow, no cancer there either! Yahoo!

According to Dr. Chen Lincoln's organs look great, they're in "tip top shape" (yes, I wrote that down in my notes). Lincoln does have high blood pressure due to all the stress his poor body is under. This can be attributed to the cancer as well as the treatment. The expectation is that when his body is under less stress we'll be able to see his blood pressure decrease as well.

So, with these great results, we have been cleared to start the first stem cell transplant. Lincoln will go inpatient on Tuesday, April 2nd. He will receive 6 days of high dose chemotherapy, have a rest day, then receive his stem cells.  He'll get the drug Thiotepa days -7 through -5 and Cyclophosamide days -5 through -2 (Stem cell transplants count down until day 0 when Lincoln will get his stem cells then the days count back up). We anticipate being inpatient for three to four weeks.


We have one more weekend until inpatient and we'll be sure to make it count, lots of playing, eating yummy foods and enjoying each other's company. 

Thanks for all the support coming our way, the encouragement and love helps so much.

xoxo,

Megan



11 comments:

  1. So thrilled for hood news but know there is so much still ahead of you! With you in prayer and spirit all the way.

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  2. That's great news and we will continue with our prayers for Lincoln and his family!πŸ™πŸ™πŸ™πŸ™

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  3. Prayers will continue.He's got this & we've got him

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  4. Such wonderful news. Continued prayer and thankfulness to the one who heals!

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  5. so glad to hear that things are looking up for Lincoln. Praying that he continues beat this wicked disease. He is such a strong little guy.And he has such a strong family behind him

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  6. How absolutelyawesome!! Thanks for the update.

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  7. Praying for you! Awesome report!

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  8. Prayers For a complete recovery for such a sweet boy!
    Unfortunately I have experienced personally all cancer patients need a good support system and it seems he truly has one! ❤️

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  9. So glad to hear all the great news! Praying for Lincoln and your entire family!

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