Monday, January 7, 2019

Round 3

Lincoln completed his most recent round of Chemotherapy on Saturday. This is round three for him - it consisted of Cisplatin and Etoposide. He did really well in the hospital, was in really good spirits and the nausea didn't come until Saturday evening.

Lincoln laughing with pop-pop and Ellie
Lincoln is fighting like a champ, maintaining good spirts but some things are getting more difficult for him. He is scared of being hurt. He is always making sure he isn't going to have a sticker change (they happen once a week) and oral medications are becoming increasingly more difficult to give him (for fear of them tasting yucky and him getting sick). He is on daily fluids that he gets overnight due to his nausea and the side effects of the chemo. I am so grateful for the technology to allow us to administer these medications at home, we all feel better when we're home.
Lincoln playing with grandma.
All and all I am grateful this round wasn't too harsh, each round is new for us, and each round has new concerns, fears and side effects.

Sunday morning selfies as we wait for discharge.
Round 4 will be in approximately 15 days, but we'll be back in the hospital at least weekly for clinic appointments.

We have reached out to Dr. LaQuaglia at Sloan in hopes he'll be able to perform Lincoln's tumor resection. If not, we are still comfortable with Dr. Rhee at Hopkins, but we're hoping everything works out for NYC.

This visit we brought Lincoln's dinosaur head along with us and he LOVED scaring the nurses. I like having an activity for him to do outside of the room so I try to bring something fun that can be used in the hallways of 11S.  I didn't catch any video of him scaring the nurses, but here's one of him the room that Jeremy got, enjoy =)

xoxo,
Megan

2 comments:

  1. God bless him,he’s such a strong little guy.I am praying for all of you.Stay strong

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  2. Thinking about you and your family megan. ��

    ReplyDelete